Written by Cindy Sacks On
It's Tourette Syndrome Awareness Month. In honor, Takeaway Tourette's will raffle 2 Astros vs Red Sox tickets on May 31st with 100% of the proceeds going to Tourette Association - Texas Chapter!
Make your donation via https://secure.squarespace.com/commerce/donate?donatePageId=558b3304e4b006e0651ec62e
$25 donation = 5 chance
$50 donation = 10 chances
$75 donation = 25 chances
Mention ASTROS in the comment section!
Go Houston Astros Baseball Club!
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TAA (National Tourette Association of America) has some exciting news to share about the Youth Ambassador Program. Like last year, TAA will be hosting a second Youth Ambassador Training from July 13-14, 2018 at the Grand Hyatt San Antonio in San Antonio, Texas. The CDC has again agreed to fund this second YA Training. We are also encouraging all teens that are qualified, to apply.
Applications are currently being accepted, please visit www.tourette.org/youth-ambassador. The application deadline is June 1.
• Youth must be between the ages of 12 and 17.
• A parent/ guardian must attend the training with the Youth Ambassador.
The CDC will cover the costs of the San Antonio YA training. The following are covered
• Hotel accommodations for the night of Friday, July 13 for the YA team (additional nights at the team’s personal expense).
• Transportation (e.g. airfare, train ticket, mileage reimbursement) up to $700 total per YA team (teen and parent/guardian).
• Transportation to the Meet & Greet at The Cherrity Bar.
• Training-sponsored meals for YA team.
• Training program materials.
At attendee’s own expense (Costs NOT covered by the Tourette Association):
• Hotel charges for any nights that are part of an extended stay.
Please feel free to reach out if you have any questions.
CDC Project Manager
718.224.2999, ext 227
JOIN US! Email TouretteTexas@aol.com for an invitation.
Dear Chapter and Support Group Leaders & TAA Members-
It is the time to request support from your Members of Congress for the continued funding at the enacted level of the CDC Tourette Syndrome Public Health Education and Research Program. This is in addition to any take action letters sent since it goes directly to the staff person who advises your Representative on which programs to support. Chapter/Support group leaders should send emails to all of the below on behalf of their state chapter/support group. Please also forward to your chapter/support group members and have everyone ask their family and friends to send emails!!!! The below list is of key Members of Congress for us to contact in your state.
Individual TAA members should email their Representative’s staff. If you do not know who your Representative is, please take a moment and go to www.house.govand enter your zip code in the top right corner to find your member. Once you have your Representative, please find their name below and cut and paste the listed/corresponding draft email text Word Document into the body of an email, add the name of the staff to the top of the email, personalize the email with your/your family’s story about Tourette Syndrome, attach the Dear Colleague letter document titled “Tourette Syndrome Funding – FY19” and send the email to the staff email provided. If they are not listed below, please go to https://www.tourette.org/public-policy/take-action/ to send a form letter.
For the following Members of Congress, cut and paste the text from the attached Word document “Draft Email Dear Colleague” into your email, personalize (your story, staff name and staff email in to:), and remember to attach the “Tourette Syndrome Funding – FY19” document to the email and send to the below staff:
Rep. Ted Poe R-2-TX – Tim Tarpley – email@example.com
Rep. Al Green D-9-TX – Matthew Rowland – firstname.lastname@example.org
Rep. Randy Weber R-14-TX- Tom Harvey – email@example.com
Rep. Jodey Arrington R-19-TX – Elissa McLerran – Elissa.firstname.lastname@example.org
Rep. Lamar Smith R-21-TX – Abby Gunderson-Schwarz – email@example.com
Rep. Pete Olson R-22-TX – Richard England – Richard.firstname.lastname@example.org
Rep. Pete Sessions R-32-TX – Ron Donado – email@example.com
Rep. Marc Veasey D-33-TX – Nicole Varner – Nicole.firstname.lastname@example.org
Rep. Lloyd Doggett D-35-TX – Afton Cissell – email@example.com
Rep. Brian Babin R-36-TX – Ben Couhig – firstname.lastname@example.org
For the following Appropriator Member of Congress, cut and paste the text from “Draft Email Appropriator...” into your email, personalize (your story, staff name and staff email in to:), and remember to attach the “Tourette Syndrome Funding – FY19” document to the email and send to the below staff:
Rep. Kay Granger R-12-TX – Suzi Plasencia – email@example.com
Rep. Henry Cuellar D-28-TX – Juan Sanchez – firstname.lastname@example.org
If you have any questions, please do not hesitate to contact me. We have received feedback from staff that these emails really make a difference and appreciate you taking the time to send them.
Vice President, Public Policy
Tourette Association of America
P.O. Box 75560
Washington, DC 20013
718.224.2999 ext 202
CAMP APPLICATIONS FOR BOYS: CLOSING TODAY, TUESDAY, 2/20!
If you are still waiting a form, please send anything else you have NOW. SCAN and email to TouretteTexas@aol.com or FAX to 281-238-0468.
If we have nothing from you by end of day, we CANNOT accept any new apps.
GIRL apps will also close soon, so please get your information IN!
Join us for a fabulous day of golfing! Read more under the EVENTS page. You can register on-line!
Camp dBR will be held Friday, March 2 thru Sunday, March 4.
Applications are NOW AVAILABLE for download on the Camp Page.
Please complete the app in its entirety! Be SURE to include/update your email address.