Tourette Syndrome of Texas

 

 

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Sign Up to receive emails about
up-coming TSA of Texas events.

You’ll never again miss out on camp dates, baseball or museum tickets, golf, gala, swim parties or other fun events!

Send your name, email address and city to:  TouretteTexas@aol.com.  Please also indicate if you are currently a member of a support group, or if you would like more information on a group.  This event list is separate from our quarterly newsletter, so sign-up for both! 


By popular request:
    Past (and current) issues of the TSA Texas newsletter (for view or download):

Current Issue Spring 2008    
Fall 2007 Summer 2008    
Winter 2007 Fall 2008    

hint: use your browser's "back button" (top left of each newsletter page) to return to this website.


Tee-Off for Tourette Golf Tournament.   See Golf Page
Monday, October 19, 2009. Save the date!


 

 

Would you like to help send a child with T.S. to camp? 

Your $100.00 tax-deductible donation will send one happy camper to our du Ballon Rouge weekend.  Click here for more information.


TSA of Texas Annual Fund Drive:  TSA of Texas, like all non-profits, relies upon gifts and donations to support our programs and everyday activities.  In this time of economic uncertainty, your donations to us are more valuable than ever. 

Click for:   Information     Reply Card

Make a Donation to TSA of Texas 

TSA of Texas, a 501(c)3 non-profit organization, supports its state-wide mission through donations, grants and fundraising.  Our children’s weekend, du Ballon Rouge, is the only TS camp in the U.S.  absolutely free to deserving families; all expenses are paid through the generosity of our donors. 

You can help us in our mission of education, support, advocacy and direct client services with a donation to TSA of Texas.   Click here to learn about different ways to make your tax deductible donations.  We also happily take donations of new items or gift certificates to be used for Silent Auction at either our October golf tournament or January Gala. 


Additionally, you can help TSA of Texas without spending an extra penny!  Use your Randall's and Kroger cards  to support TSA of Texas.  To join the Randall's program, ask the checker to link your Randall's Remarkable Card to charity number 2493 (tell them once and it is permanently linked).  Download  a Kroger Neighbor to Neighbor barcode letter to link TSA of Texas to your KrogerPlus Card the next time you shop or  email your name and address to TouretteTexas@aol.com to have a copy of the barcode letter mailed to you.   NOTE:  The Kroger Neighbor to Neighbor program is updated each year – the new 2009-2010 barcodes are now available and you MUST re-register TSA of Texas via the barcode in the attached letter.

RE-REGISTER your Kroger card with this NEW 2009-2010 bar code
          new bar code (in pdf format).

 Support Groups for TSA of Texas

TSA of Texas currently hosts support groups in Austin, Dallas (North Texas), Ft Worth, Katy, Houston, Southeast Texas/Golden Triangle and San Antonio.  For specific meeting locations and dates, please click on the appropriate support group button to the left or check the handy grid below.

We are working to add more cites to our coverage.  If you are interested in helping form a support group in a Texas city, please contact us.  e-mail: TouretteTexas@aol.com or call Sheryl Kadmon, Executive Director, at 281-238-8096.


 Contact Info:

3919 River Forest Dr
Richmond TX 77406

 (281) 238-8096  Phone
 (281) 238-0468  Fax
 (866) 896-8484  Toll Free in Texas
 
 (800) 209-0796   Emergency pager
 www.TouretteTexas.org - website

 
TouretteTexas@AOL.com - e-mail


This is WHAT'S HAPPENING!

Click here on information on summer parties around Texas

WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them.  Use this link for Tourette Syndrome information, resources, links and a TS Discussion forum:   http://www.wemove.org/ts/

NEWLY DIAGNOSED TOURETTE SYNDROME - click here to view web presentation
Dr. John T. Walkup
3 hour web presentation (3 video segments, with slides); an abbreviated version of an all day seminar at TSA's 2006 National Conference in Alexandria Virginia. Family viewers are urged to share this presentation with medical and allied professionals.
This web presentation was made possible through the continuing partnership of TSA and the CDC (U. S. Centers for Disease Control and Prevention). Viewers are urged to complete the Survey at the end of the presentation.

TSA Applauds the Passage of Genetic Information Non-Discrimination Act (GINA). Long-awaited legislation will protect against healthcare and employment discrimination.  Read more here.

Tribute cards - Simply by making a donation to TSATexas for a wedding, birthday, anniversary, personal loss or other event, we will send an individualized Tribute Card for the occasion.   Download the form here.  We accept credit cards.

TEAM Project is a non-profit agency which provides information, training and referrals for parents of children with disabilities throughout the state of Texas. All services are free of charge and are rendered in Spanish, English, and Vietnamese. For more information, please visit their website at www.partnerstx.org.

Coping with Tourette Syndrome: A Workbook for Kids with Tic Disorders
By Sandra Buffolano, TSA of Texas member

Children with Tourette syndrome face a unique set of issues that are distinctive to this disorder.  Related disorders, such as OCD or ADHD, often present an additional challenge for these children.  The innovative solutions in this workbook will help kids cope with school, relate to friends, manage their behavior in public places, and strengthen their self-esteem.

Sandra Buffolano has over 25 years of experience in education as a teacher, a diagnostician, an in-home trainer, and as a Licensed Specialist in School Psychology. Her biggest pleasure is working with families in and out of the school setting.  She has volunteered at the du Ballon Rouge (camping weekend of Texas children with T.S.) for 5 years and her dedication to children and adults with Tourette Syndrome is also reflected in her volunteer work with the Tourette Syndrome Association of Texas.  She conducts in-services and speaks to parents, educators, and support groups.  Sandra was recently recognized as a 2008 Bell Ringer Honoree by the Mental Health America of Fort Bend County in Texas.  Sandra received her Masters in Education and her Masters of Behavioral Science at the University of Houston.  She lives in Sugar Land, TX with her husband Richard and two daughters.  Her youngest daughter, Lauren, is her hero, and the inspiration for her newest book, Coping with Tourette Syndrome: A workbook for kids with tic disorders which is being published by New Harbinger Publications, Inc.  Look for it on book store shelves and on amazon.com.

Front of the Class / Brad Cohen - Watch your local Hallmark store for the DVD of Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had.”   The movie and the book of the same name are based on the true story of Brad Cohen (played by Jimmy Wolk), who was challenged with Tourette’s syndrome from a young age, but defied all odds to become a gifted teacher.  Brad’s book has also recently been released in paperback.

For more information, visit Brad’s new web site www.classperformance.com

New National TSA Website page
- See our NEW page that will provide valuable info about joining National TSA and will link you to their web site. CLICK HERE.

Advanced/additional info is always available for all events at
(281) 238-8096 (Tourette hotline-leave a message).

SUPPORT GROUP SCHEDULE: click underlined groups to go to their page           Top

 GROUP  NEXT MEETING  MEETING SCHEDULE  CONTACT
North Houston * Aug 6 (Thu) 7-9
swim party
2nd Mon of every month
No regular meetings until further notice
832-489-8626
Clear Lake on holiday No meetings 281-998-7678
Katy * Jul 8 (Wed) 7-9pm 2nd Wed of every month-No regular meeting in Aug..Swim Party Aug 6 (Thu) 7-9pm.  Click here 281-395-5392
SE Texas-Golden Triangle     409-837-2406
Austin * July Swim Party tba 1st Tues of every month.
 
512-218-1111
Fort Worth* to be announced 2nd Sat of every month
 
817-925-7004
San Antonio July 7 (Tues) 6:30-8pm
July11 (Sat) - swim
1st Tues of every month. 
 
210-479-3740
Channelview phone support only   281-452-3670
North Texas/Dallas Aug 9 (Sun) 1:15pm
at Main Event

2nd Saturday of every month
No July meeting

214-808-6626.
Adult Social Group call hotline   281-238-8096

* indicates Concurrent Children's Group
  The views and recommendations expressed by speaker(s) at these support group meetings are not necessarily endorsed or promoted by the TSA of Texas or The Tourette Syndrome Association. The speaker’s views are provided for your information only.                                                                                        
See Document Library (below) for complete Support Group Info


 Tourette DOCUMENT LIBRARY.  Download documents of your choice.  This library listing will grow in coming months.  Your feedback (as to what is included here) is welcome.

Library:
   Hint: use the "Back" arrow on your browser to return  from viewing a document.

Click Document Name to Download    Format for each document
2009 Texas Calendar of Events   Updated 6-4-09 JPG (graphic) format
Facts about Tourette PDF: Adobe Acrobat
In-Service for Educators   Word (most versions)
Navigating the System (for Parents)   Word (most versions)
Mission Statement of TSA Texas Word (most versions)
National TSA Q&A (Questions and Answers) PDF: Adobe Acrobat
TAKS Comparison Chart JPG (Windows graphic)
Board of Directors Listing  Word (most versions)
Support Group Info   Page 1    Page 2    Updated 6-4-09 JPG (graphic) format

24 - Hour Emergency Response via pager: (800)209-0796

Click HERE for National Tourette Assn website


What is Tourette Syndrome?

Tourette Syndrome is a neurobehavioral movement disorder characterized by motor and vocal tics. Beginning in childhood, it causes those affected to make movements and noises they cannot control. Additionally, many are plagued by obsessive-compulsive disorder, attention-deficit-hyperactivity disorder, oppositional behavior and other disorders. Although medication may help control the symptoms, as of yet there is no cure. The Tourette Syndrome Association of Texas, one of the largest chapters in the country, is a 501 ( c )3 non-profit organization. We raise funds to directly assist Texas families and children in crisis, 24 hours a day, 365 days a year.

SERVICES

Educational:

  • In-service programs for professionals, students, parents & community
  • Educational programs, conferences, and conventions
  • Dissemination of information—packets, brochures, telephone
  • Video-tape and reference library

Referral:

  • Physicians
  • Therapists
  • Community Services
  • State and County Agencies
  • Sources of Financial Aid

Support Groups:  

Advocacy:

  •  Educational and legal empowerment

Counseling:    

  •  Lay counseling
  •  Professional counseling

Special Funding:

  •   Kenneth H. Davis Memorial Family Assistance Fund
  •   Summer Camp Scholarship

Newsletter        Brain Bank Program         Crisis Intervention
 


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